In the fall of 2023, I had plans to go to Austin, TX for a long-awaited girls trip. In the few weeks leading up to the trip my son’s seizures began to increase. One occurrence every other week was a typical number of seizures for my son to have. But as my departure date neared,… Read more: When a Caregiver Receives Care

Am I losing my mind, or as a caregiver, is the whole world gaslighting me? These are my honest thoughts on a near daily basis. Maybe not always gaslighting but trying to sweep me and my child under the rug. Maybe even just shut me up enough to keep things easy. Not rock the boat.… Read more: Is Society Gaslighting Caregivers?

I was at the doctor’s office and had just completed another assessment for my son and had another conversation about my child not meeting his developmental milestones. Before I could process it all, the doctor was gone. Moments later a social worker entered. She seeped into the room with a somber look on her face… Read more: Three Supports I Wish I Had

When it comes to having a disabled child, their path from birth to end of life, has no comparison. Their journey, their development, their abilities are completely incapable of being predicted. There may be some similarities from case to case if it is a similar genetic anomaly or condition, but you really can’t predict what… Read more: When Hope is Ableist

Background: My story but not a unique one While I was pregnant with my second child, the plan was to return to work. The plan had always been to return to work and bring the kids to day care. I had a degree in public health that I planned to put to good use. I… Read more: The Case for Caregivers to be Considered Disabled

We’ve all done it. Missed the turn the GPS warned us was coming up in less than a quarter mile. It’s the moment you hear, “recalculating” that you hold your breath because you don’t know which way you’ll need to go and you’re not sure if you’re going to miss the next turn while you… Read more: The Crushing Limbo of Having an Undiagnosed Child

Since I launched my website along with my blog and Instagram I have been digging deep into the world of social media and marketing, and the first opportunity I noticed was the chance to tell my story via podcast interviews with individuals that have a passion for advocating for disability rights and neurodiversity. Just last… Read more: The Way We Treat Our Disabled Children is a Public Health Problem

Raising a disabled child is not for the faint of heart and our families don’t request this path, but we are on it, and we need to share it with you, society, because we can’t be invisible anymore. We need your help and support. We need you to see the cracks so you can pull… Read more: Three Ways Society is Failing Our Families Raising Disabled Children

When my daughter Eliza was born, she relied on me for everything. Motherhood was a very hands-on task. Constant holding and rocking and cuddling and feeding, and it was all about the bonding. I was teaching my child I would always be there for her, and it was beautiful and absolutely necessary. As she grew,… Read more: Why Doesn’t “no mean no” When You’re a Disabled Child? 

It was a bright, hot mid-July day, and summer vacation was in full swing. For the first time ever, I had nearly forty hours a week of childcare lined up, and I was finally feeling the load of taking care of a disabled child lighten. Asher had just turned six.   I was feeling in… Read more: Writing My Memoir. How it Started for Me and Ended for You.

When you begin to realize your child has limitations and disabilities, there is no way around it, you will grieve. You will grieve the life you thought you were going to live. You will grieve the life you thought your child was going to live and you will grieve for their siblings, and you will… Read more: Life with a Disabled Child. How to Move from Grief to Acceptance.

The first lesson I learned when Asher was born two months early was that the less you disrupt a preemie the better. Their sleep cycles in the hospital in an incubator are drastically shorter than the sleep cycles in the womb. Because of this, the nurses bundle the infants care into one sequence to disrupt… Read more: Learning the Hard Way. Five Signs of Good Pediatric Therapy

When it came to realizing my child was disabled, it was a slow burn. I assumed our most difficult challenges ended the day we left the special infant care unit. I assumed we had finished the marathon and we were on our way to “normalcy”.  After discharge there were a couple doctor referrals to follow… Read more: My Child is Disabled. Knowledge is Power. And Hindsight is 20/20.

When I started a family, the last thing I ever imagined was having a child with disabilities and medical complexities. Even if I knew it was a possibility, it honestly wouldn’t have stopped me or my husband. It’s one of those things that’s impossible to imagine until you’ve experienced it for yourself. Like winning the… Read more: How I Got Here…